NRL News

Video shows need for peri-natal hospice care

by | Jan 30, 2014


By Pat Buckley, European Life Network

OnedaymoreOne Day More is a support group for parents who have received a difficult pre-natal diagnosis. This could be news of terminal illness (fatal foetal abnormality) or disability.

The parents featured on this video all received a distressing diagnosis about the health of their unborn baby.

Cliona and Maura both gave birth to babies who only lived for a very short time. Cliona’s son John Paul was born with anencephaly and lived for just 17 minutes. His whole family got to spend these precious moments with their little brother, son, grandson. Maura’s daughter, Laura lived for 7 months with Edward’s Syndrome. Her family was lucky enough to be able to have her at home for Christmas.

Liz was told that her son’s limbs were not growing and an abortion was suggested by medical staff. Liz says she would have benefitted hugely at the time from speaking to someone who had been through a similar experience to offer words of comfort and support.

Helena was repeatedly given poor pre-natal diagnoses for her baby Luke. The pregnancy was difficult and all predictions indicated that Luke would be born with a serious illness and disability. After a stressful and heartbreaking 9 months, Helena gave birth to a healthy baby boy.

All of the parents in this group want to promote peri-natal hospice care and would like to be contacted by anyone going through a similar experience as them.

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Editor’s note. This appeared on Mr. Buckley’s blog.